This meeting gives a direct voice to patients living with Marfan syndrome, their families and carers to share their experience in managing and living with this condition.
During this meeting, medical specialists and patients will discuss the following topics:
— Diagnosis, investigation and management of Marfan syndrome
— Aorta and Marfan syndrome
— Ophthalmic problems and solutions
— Management of scoliosis
— Planning a family when living with Marfan syndrome
This meeting is FREE to attend for patients, family members and carers. Medical students and trainee doctors/healthcare professionals can also attend for free.